Finally out of Kings and back home for the weekend - the Marsden took pity on us and rang to say perhaps the last thing we felt like doing was driving down for an out patients appt on Friday since we were about to go in anyway again next week and had just had a week at Kings. I wasn't going to argue - so at least we didn't have to do that!
Today we had easily the most fun in the last five months - ok so not much to compete with but still it was GREAT we took the children (after endless calls and complicated bookings for disabled seating in various cinemas) to see Mamma Mia and we all laughed and laughed - what a fantastic feel good movie hoping the effects will stay with me until at least Christmas. And also really hoping that this means it is now cool to like Abba as sadly I was that kind of a geek - Rose wants their complete works downloaded on to her (Simon's) ipod so it looks like it runs in the family...just an absolutely brilliant couple of hours and anyone who doesn't love it is a total loser...the sight and sound of Colin Firth and Pierce Brosnan gamely belting out Abba tunes totally out of tune will make me laugh all weekend. It was also a first for Rose to be in circulation (albeit in the dark!) but it was a biggie for her as she is incredibly self-conscious about how she looks and being in a wheelchair so hopefully it is all good practice and reinforces what we keep telling her - that the world will take no more than a passing interest and that she is gorgeous and beautiful with and without hair, with and without being able to walk.
So a trip into my own childhood with Abba and another one with Anne of Green Gables (or Anne of Green Bagels as Rose thinks it's called) - our friend Felna brought the entire original collection round on DVD, hours and hours of fantastic nostalgic viewing (so she's totally got the limits of our lives at the moment) - Rose is loving it but I am of course loving it a lot more and being on an emotional register just slightly higher than average at the moment am spending most of it weeping. Simon and Felix being spared this one - obviously there's a test match to be watched and now the Olympics too!
Still waiting for a community physio to get in touch and it now transpires she is on a waiting list which horrified us a bit as Stanmore phoned to see how she was getting on with her walking and our reaction was ???!!!***????? - what walking??? We were under the impression she wasn't supposed to weight bear for six weeks and now I'm not sure where we got that from or if I dreamed it - Rose will not put weight down in a million years as she is terrified of the pain and so her leg has 'stuck' in a sort of half bent position which all the shouting, begging, pleading, bribing, persuading and threatening will not get her to move. Not sure if she can or not really so we are - just for a change - feeling way out of our depth and desperate for a live-in surgeon, physio and oncologist to ease the responsibility of the average day with Rose. It's now a possibility that between chemo she will go back to Stanmore as an inpatient for some intensive physio which although its another hospital and more time away from home would be great as someone else (and qualified) can be the bad guy and make her cry for a change.
Anyway back to the Marsden next week for more chemo - three weeks back to back now but with hopefully a couple of days off in-between each week - hoping she copes ok, gets her leg straight and manages to stay off antibiotics for a change!
