So - it was pretty much a fabulous week as you can see from Rose's edited highlights! Why write 1000 words when she can sum it all up so well in 80...I should get her on the case more often. It was my first attempt at a 'normal' school holiday without Felix being spirited away to friends and with both of them clamouring to do and see an unrealistic amount of people and stuff. Pulled it off but two unscheduled and unwanted pit stops in Kings for her b****y gastrostomy were really, really dull. It's definitely time for it to come out - I would rather hold her down and force feed her Krispy Kreme doughnuts now to get her calorie intake up as it has started to become more than just a little bit troublesome. Red and sore by halfway through half term Kings took a couple of days to decide how to treat it by which time it was oozing pus (ooh lovely) and a vivid shade of bright red... so back we went. Another day of (Felix's) grand plans scattered to the winds - anyway we've now had a course of anti biotics but it's still not happy, is sore and driving her mad and it's a gastrostomy that needs to COME OUT asap. It has served its long and useful purpose and we can't wait to see the back of it now. Seeing the gastric surgeon next week and hoping he will put her on a list soon soon soon to remove it.
We did some lovely things too - we saw the long-awaited Oliver! which felt very symbolic. Twelve weeks of watching Nancy be put through her paces throughout the summer months on I'd Do Anything with Rose strapped to a traction bed while chemo dripped slowly into her and there we were almost a year later like any other family actually seeing the show. I could have broken down and sobbed through the whole thing to be honest but I chose to eat chocolate instead. The children loved it and it felt like a big achievement for us all. Something that had been in our diaries that we actually got to do despite having been in Kings until the previous afternoon...
We also saw lots of family and friends and enjoyed the break from school, homework, Felix's endless round of sporting fixtures and Felix's endless play rehearsals! It's all back to normal now and everything crossed that she will get to her Make A Wish Foundation weekend away that has been nearly a year coming...
